Life with spasticity – real stories
From around the world, of all ages, sizes and genders – they all have a story to tell. Discover how others living with spasticity successfully manage the challenges of their everyday life.
In everyday life, living with spasticity may mean physical symptoms (e.g., pain, contractures, pressure sores), decreased functional abilities, difficulties with mobility, hygiene, care and decreased quality of life.
Patients may also be prone to developing secondary conditions such as infections due to lack of ability to clean clenched or tight areas. Other conditions can lie within psychological disorders, especially anxiety, loss of self-esteem and depression. In severe cases, those living with spasticity may have to rely on caregivers, extending the impact spasticity has on them beyond themselves.
Spasticity also has an economic aspect. For example, lost income through days of unemployment or disability-adjusted employment, higher living costs of additional medical treatment, tools to help live with spasticity, or living space changes.
To help navigate some of the daily life challenges spasticity could force upon patients, here are some stories from people living with spasticity, sharing their everyday life: